There are days where I don’t want to be seen. On these days I find people frightening. They have the power to lie, hurt, harm, abandon, to kill and be killed, to die.
I believe that, in spite of needing help for various reasons, learning disabilities and mental health problems should not be seen as a hindrance. They give us traits that can be utilised.
You feel like giving up. Because it will not go away. A lifetime of illness that's what they say.
I didn’t know what to do, I was in so much emotional pain that I didn’t want to go on living but at the same time I was too afraid to die.
Outwardly people know me as cheerful and sociable, but there is this other side which up till now I have carefully kept hidden.
"It was scary not understanding what was wrong and having little hope. It took years of fighting to be heard and many doctors visits. Fighting is hard when you feel ill. But I know I am not alone.
Three years ago, I learned the hard way that blood clots aren’t just a plot device. What started out as a fractured ankle resulted in heart and lung damage, and a very very long recovery time.
As part of our Hidden Project, we're asking people from our community to share stories of their hidden illnesses. We believe that only by sharing our experiences can we begin to understand them – and one another.
People may not understand how invisible illnesses disrupt our everyday lives precisely because they're hidden. Root Experience trustee Tilly Baker tells us how an untimely bout of her condition created a new understanding with her work colleagues.
Our artistic director Simon explores his recent experience of back and hip pain while working on the charity’s project about invisible conditions. He asks whether the medical treatment we receive really gets to the root of the problem...